Tag Archives: awareness

CP Awareness Day Video Project!

Hello All!

Well, as most of you may know, March is CP Awareness month! But today is even more special– March 25th is the 3rd Annual CP Awareness Day here in The United States! To commemorate this event, I’ve put together this video compilation for those in need of a little reassurance about their bodies & to express what we deal with on a daily basis with a physical disability. Thank you to the lovely ladies who were brave enough to share bits of their experiences with cerebral palsy, I am so grateful & couldn’t have done this without you! Enjoy… 🙂 And please feel free to share!

-Katy

(PS. Please check out more fun stuff from TeenCP on Facebook!) Watch this video on YouTube

CLICK HERE! Reflections on Cerebral Palsy for CP Awareness Day 2016

Featured Spotlight: TeenCP in 2015!

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Hi All,

I do hope your November is off to a good start! I’d like to give a warm thank you to James Randolph of Artiscend, a digital archive spotlighting inspiring stories from artists, musicians & people from all over. This article below is a lovely profile piece on me & TeenCP. I really appreciate how genuine these words come across, especially as they are so personal to me & everyone who has been alongside my internet journey. The power of voice proves to be yet another way to extend our reach beyond amazement!

What is Artiscend?

“Our job is to be the avenue for the talented craftsmen and artists who want to see their work appropriately spotlighted and for the patrons of those artists to have a place to express their appreciation.We always feel like those who deserve it most are those who are appreciated least and we hope to help change that. Musicians can receive direct support from their fans,  Application designers and game developers will have a platform to receive credit and contribution from the technology they’ve created and inspired. Wherever the artists are changing the world, we’ll be there to help them realize their vision.”

Click me: >>>Artiscend Article on TeenCP

Hope you enjoy it, I know I did! 🙂

-Katy

Getting back to it…in Barcelona

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El ensanche, (the expansion) near the Plaza de Espana in the center of Barcelona. What a view, I am so taken by this city,

Hi everyone!

Happy 2014–I hope everyone enjoyed their holiday and feels ready to take on a new year of school, work, successes, and discoveries. I know I am!

Just a quickwrite for now–

I am getting back into the swing of things after a nice break, I was pretty sick for most of dec-jan but I am back in action, and out of the country! I’m adjusting to life here in Barcelona, Spain for the spring so expect more content to come your way! I just got past my jetlag, and am improving my Spanish everyday since I am living with a host family. Thanks for all of your comments, thoughts, messages, and inquiries. I plan to spend some time responding to all of your emails, but I appreciate your patience. 🙂

Please, if you haven’t already, “like” the TeenCP Facebook page here for more frequent updates, thoughts, discussions, and pics of my journey in Europe!

Take care, Katy

Team TeenCP Recruiting for The World CP Challenge!!!

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Hi Guys!

I hope you are all having a fabulous week… good news, it’s almost Friday! So as some of you may have read on the TeenCP Facebook Page, I am interning at United Cerebral Palsy of Orange County this summer to help promote a worldwide fundraiser called The World CP Challenge!

Today, I am asking those of you who like to stay active and fit to consider participating in the World CP Challenge in support of children with disabilities. The World CP Challenge is a 4-week health and wellness activity, which helps you get active while having a positive impact on the lives of people with disabilities AND spread CP awareness! Check it out online with the link provided below to watch a quick video too!!

The World CP Challenge:         

  • When: September 4th – October 2nd
  • What: 4-week team challenge, promoting health & wellness
  • Teams of 4 challenge themselves to take 10,000  steps a day—over 40 activities can be done and converted on the website to steps
  • Wear your pedometer daily & log-in your steps and watch your team take a virtual trek around the world, climbing the highest peaks on each continent.
  • Cost – $25 per adult/ $10 per child
  • Where: www.worldcpchallenge.org/ucpoc   

More details about the challenge can be found at www.worldcpchallenge.org/ucp-oc.org

Of course there are other UCP affiliates here in the states, so check out your local area to see if there is a center near you that is participating in the challenge! If not, you can always sign up your team or donate to support the Orange County center that I work with if you are feeling generous. 🙂 I am going to register my team, Team TeenCP very soon!! Registration ends in August, so luckily we have some time to pass on word of the great fundraiser that supports people like you and me who have CP!!

I will be posting updates here and there over the summer, but if you would like in on the Challenge and need more information, please feel free to contact me via email and I can send you all the info you need to help you succeed with this fundraiser!

kfetters@ucp-oc.org

To learn more about the services UCP-OC provide the community, visit www.ucp-oc.org.

Thanks for reading all, have a great weekend!!

-Katy

P.S. Stay tuned in the coming weeks for some upcoming guest blogs from here on TeenCP!

The Importance of Relating

Hi all, 

Our fourth guest blogger is Zachary Fenell. He is some one who is already out there in the CP world as a young adult who is not afraid to let others know he had CP! But he wasn’t always this way. He is spreading awareness about CP through his online and freelance work, and as an author of a book about his experiences with CP as a teen, called Off Balanced…. so there you have it guys, a true TeenCP leader! Read on to learn more about Zachary Fenell, and how he aims to relate to others with CP. Find out where you can find his book too, and share your thoughts with me and TeenCP  by commenting below, or on the facebook page. Click on the facebook icon on the upper right of the homepage to connect with us. Enjoy. 🙂 -Katy

Hey there Teen Cerebral Palsy readers! My name is Zachary Fenell. I’m 25 years old and I was born with a mild case of cerebral palsy. Yes I know I’m no longer a teenager, but I am enamored by teen life. My captivation stems from failing to fully enjoy my own adolescence. You see growing up I remained highly self-consciousness about having CP and in an attempt to be like everyone else, I ended up trying to hide my disability.

Cerebral palsy prevented me from achieving my camouflaging efforts. Thanks to my CP I walk with a limp and encounter balance issues. Concern from my parents led to IEP accommodations in school which emphasized my differences. I can handle steps perfectly fine using a railing, both ascending and descending. However my parents didn’t want me taking any unnecessary risks so once in junior high I received orders to use the elevator at school. I could even leave class five minutes early to avoid accidentally getting knocked over in the halls by a herd of students rushing from classes to classes.

Additionally I went from participating in gym class to serving as the teacher’s assistant. I always imagined an outsider finding the scene peculiar. Me in my street cloths holding Mr. Newman’s grade book taking attendance while he led my peers all dressed in their red shorts and Memorial t-shirts in warm ups. A curious onlooker might ask “Why isn’t that kid participating?” or “How come he has the teacher’s grade book?” I certainly perceived the situation as an awkward one.

All the negative emotions stirring within my mind left me feeling isolated. I didn’t know anyone else with CP who I could relate to. My parents’ care and concern for my wellbeing, well didn’t come across as loving. Rather I considered the safety precautions they placed in my life limitations. Mom and Dad insisted they wanted what’s best for me but they could never understand. I’m the one living with cerebral palsy, not them. They just couldn’t get it.

Today I’m pleased by the various cerebral palsy support groups on Facebook enabling people with CP to connect with one another. I’m encouraged to watch a place specifically catering to teens like Teen Cerebral Palsy blossom. I know I wrote my teenage memoir Off Balanced hoping to provide support to current adolescents dealing with the self-confidence issues I battled. These resources provide great opportunities to relate with each other, vanquishing negative emotions such as isolation and embarrassment.

The ability to empathize and feel emotional attachment proves so welcoming. Excitement builds when you get to say “Oh my God! I totally get that. This is what happened to me…” I recall reading Natalie’s guest post here back in September and completely sympathizing with how she felt when her band directors played video footage of the band in action. Natalie’s words left me flashing back to my senior year in college.

Graduation loomed two weeks away. Per the usual, Notre Dame College celebrated outstanding academic accomplishments throughout the past school year via the annual Honors Convocation. With me set to win three awards my parents came up to campus touting their camcorder. Later on watching the Convocation footage I did a double take. My limp seemed so pronounced. An urge to indulge in self-pity emerged. Taking a deep breath I thought “Oh well! It is what it is,” ultimately defeating the alluring temptation.

Knee-jerk reaction to the above most likely takes form in a cliché, “Easier said than done.” Trust me, I recognize the incredible challenge involved in freeing yourself from negatives and maintaining a positive attitude. Heck, that’s the basic theme to my book Off Balanced. Thankfully though, these days the Internet eases the difficult task by increasing access to resources like Facebook support groups and Teen Cerebral Palsy.

Author and writer Zachary Fenell remains dedicated to spreading disability awareness through written word and social media. He has written disability orientated content for websites including e-How, Disaboom, and The Mobility Resource (a leading provider in handicap vans). Fenell’s book Off Balanced can be found on the Amazon Kindle and Barnes & Noble Nook. To learn more or contact Zachary visit www.zacharyfenell.com.