Notable Youtube Channels:
Follow 20-something Amanda on her journey; she is super real, raw, and her honesty is admirable.
Follow this awesome teen who gets real with life, style, and her disability.A T-Rex Life Youtube Channel: Robyn Lambird
Follow this laid-back teen for some cool, yet reflective insights on having CP.The Limper: Jake Olver
Follow this inspirational teen when you’re in need of some motivation, or just a bright smile.Charisse Living With Cerebral Palsy
Watch this short video to get a real sense of how CP is for some people, and how NOT to let it define your being.It Just Takes Me A Little Longer: Scott’s Story
Follow this author to learn about his crazy story and personal anecdotes/advice videos about CP.Author/Speaker/Advocate: John W. Quinn
Follow this channel for some great “real talk” from young adults living their life with CP (and to see more from the organization.)Cerebral Palsy Alliance Youtube Channel
Notable Bloggers, Writers, & Advocates:
Three Australian Football Players blog about their experiences on a national sports team.CP 4 Life Soccer Players
Find John’s book about his time in the US Navy when he kept his CP a secret for yearsAuthor John W. Quinn
Read this article about how this Breaking Bad actor and UCP ambassador deals with his CPActor RJ Mitte
UCP National is a USA based, non-profit organization for health services and resources related to CP and disabilities alike. There are dozens of local affiliates around the country, so maybe you can find one in your area! Each UCP will differ according to how they operate and what they offer, but holistically, the organization exists to provide a comfortable place for a child with a physical disability to participate in therapy, receive counseling, and family/community support.
“Today, UCP continues to work closely with its affiliates on issues that open doors for people with disabilities. From home ownership to health care reform, inclusive education to competitive employment, UCP has established itself as a leader in the disability community “and as a strong voice for individuals with disabilities and their families.”
“We provide services to thousands of children, teenagers and adults with cerebral palsy and provide support and assistance for parents and carers. Each of our services are designed to enhance people’s lives and to enhance participation in the community.
The services we provide include therapy and health services, recreation and sport, counseling, respite and employment services.”
“The CP Family Network mission is to:
- Provide information to all cerebral palsy families about diagnosis, treatments and resources for their child.
- Provide information and legal resources to families that suspect a preventable birth injury may have caused their child’s CP.”
“The Cerebral Palsy Support Network strives to change community attitudes towards people with cerebral palsy by providing information and awareness about the issues that impact on their lives.
Our vision is for a society:
– where people with cerebral palsy are not limited by their disability and have the right to live their life the way they choose.
– where diversity is enhanced, respected and celebrated.
– where people with cerebral palsy are included in community life, in real and meaningful ways
– where the community is understanding and has empathy for the feelings, experience and perspective of parents who have children newly diagnosed with cerebral palsy
– where family members and friends are supported in their caring role.”
“Launched in late 2005 by two mothers in Atlanta, Georgia, “Reaching for the Stars. A Foundation of Hope for Children with Cerebral Palsy” (RFTS, Inc.) has grown into the largest North American pediatric Cerebral Palsy nonprofit foundation led by parents, with a focus on the Prevention, Treatment and Cure of Cerebral Palsy. We are committed to serving the needs of children with Cerebral Palsy, their families, and the care givers involved in their care.”
Cerebral Palsy Guide is a national organization dedicated to educating individuals about cerebral palsy. While raising awareness about this movement disorder, our team is also committed to the support of children with CP and their parents and caregivers.
It is our mission to create an easy-to-use, informative website that provides solutions for families. It is our hope that Cerebral Palsy Guide can help parents of children with cerebral palsy find peace, healing and happiness.
Cerebral Palsy Research:
“The mission of CPIRF is 3-fold: to fund research (for cure, care and best practices), to advocate for more Federal support for research relevant to developmental disabilities, and to foster superb educational programs in medical schools so that the next generation of children with developmental impairments would have knowledgeable doctors, nurses and therapists prepared to care for them.”
“Research projects in this center focus on: 1) delineating mechanisms of sensorimotor control in typically developing children and adults, 2) elucidating the biological bases of pediatric movement disorders, and 3) applying research-based knowledge toward developing evidence-based educational and therapeutic interventions. All three areas are intertwined, with the ultimate goal of applying the findings of each of these to improve the lives of children with physical disabilities. The work has been described in The Lancet: “Progress in understanding the fundamental basis of [CP], and progress in treatment and rehabilitation demand objective and discriminating measures of sensorimotor coordination. Using such an approach in [recent studies], Gordon and colleagues provide new insights into the nature of the disabilities? More effective therapies and rehabilitation may be possible by targeting [Gordon’s findings] to assist children with [CP] to learn how to optimize their manipulative capacities.”
“The Cerebral Palsy Research Consortium of Michigan (CPRCoM) is a collaboration of researchers and health professionals within the State of Michigan who are establishing a Cerebral Palsy Research Registry. The CPRCoM has been approved by the University of Michigan’s Institutional Review Board (IRB HUM00034648). The goal of CPRCoM is to promote and accelerate cerebral palsy (CP) research aimed at measuring prevention strategies, treatment outcomes, and maximizing quality of life and community participation for persons with CP. United Cerebral Palsy of Michigan and the Ann Arbor Center for Independent Living are community partners of the CPRCoM.”
ABOUT STEPtember: Looking for a way to increase your fitness levels, develop new healthy habits, have a great time with friends, and raise incredibly important funds to support people living with Cerebral Palsy (CP) and other disabilities across the US – all at the same time?
Then look no further, because here it is – STEPtember
Run by United Cerebral Palsy, the STEPtember charity event challenges people to take 10,000 steps a day or the equivalent activity for 28 days straight in, yes you guessed it, the month of September.
Unlike many other charity challenges, STEPtember is done in your own time. Just take 10,000 steps a day or the equivalent activity whenever you like, wherever you like, and log your “steps” online.
Sounds easy, right? Well, perhaps not. But certainly rewarding, inspiring – and enormously appreciated!